Jo's Story "Endometriosis and Internal Cystitis"

Updated: Aug 6, 2020

My journey with Endometriosis didn’t start until I was 30 years old. I never had any of the issues with my period in my teenage years or 20’s, as most women with Endometriosis seem to do. I remember at around 29 or 30 years of age I started to get uncomfortable and sometimes slightly painful periods. The pain was only mild, certainly not keeping me bedridden or away from work.


However, over the next three-four years, I started to experience other symptoms- more frequent trips to the bathroom and, more noticeably, sex became painful. After a year or two of regular visits to the GP and regular prescriptions for Urinary Tract Infections (UTI) I said “enough”. I told my GP I didn’t think I had UTI’s, and I wanted to be referred to a specialist.


I was referred to a urologist. Thankfully I had insurance through work and I didn’t have to stress about the financial stuff. During the examination, I experienced a lot of pain. The first thing the urologist said was that he was going to refer me to a gynecologist. Off I went to see another specialist. During the internal exam I felt an incredible amount of pain which left me in tears and my gynecologist had no doubts I had endometriosis. I’d never heard of the disease before. It was quite a shock. My gynecologist explained that he would need to perform a laparoscopy to determine it for sure. I was booked in and a month later had the op.