Insight Endometriosis

We work towards a future where
endometriosis is widely recognised and understood,
and those affected are supported and empowered

Insight Endometriosis is a community-based registered Charitable Trust helping women and teenage girls affected by this significant condition.
We improve outcomes by empowering women with quality information to best manage their endometriosis, and build a strong endometriosis community providing mutual support and encouragement.
We work collaboratively with health providers and community organisations, and reduce diagnostic delays by raising awareness in the wider community.

Join us on...

Get your LIFE back! Come to our free evening seminars and empower your decision-making. Join our support groups, meet others and share experiences - you are not alone!

Our services include:

A free/koha-based community service
Personal appointments with our Educator (can be by phone or Skype)
Free evening seminars on a variety of topics, many with guest speakers
Coffee/support groups and a special group for teens and young women
Email and phone support and information
Facebook page to build community and advise about events
Post-operative hospital visits
EndoWhat?! presentations to community groups and workplaces
Information including fact sheets here or by post
Structured education - night classes and seminars
Newsletters detailing local events
Support and raising awareness
Helping all ages including teens, and also partners
Educating workplaces and supporting health professionals

~ Awareness ~ Information ~ Support ~
~ Learn ~ Share ~ Connect ~

Your voice...

From when I was a teen to being diagnosed at the age of 27 - I to was told over and over again from family and doctors that I was just over exaggerating the pain. After sooo many visits to the doctor I finally got a referal and had the laparoscopy, I wasn't relieved as they said I had too much and required excision surgery.On the bright side Im now 30 and have 3 beautiful boys - two before diagnosis and one after surgery, and of course the miscarriages in-between.

- Facebook
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I was diagnosed with IBS through my GP for years. Eventually I self referred to a specialist after hearing that someone I vaguely knew had endo and then read an article in a magazine about it (ironically while in my GP's office). But after my first laparoscopy I thought that would be the end if it. I wasn't told that there could be other implications of having endo and didn't find that info out until years later. When I told my GP I had endo she wasn't concerned at all and didn't want to discuss it at all.

- Facebook
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I was mis-diagnosed for years, and told repeatedly that what I was experiencing was normal or IBS. If I'd known in my teens instead of my thirties, I would have made a lot of different choices in terms of career/family. The diagnosis was a relief, in the sense of having a name for it, and knowing that it wasn't all in my head; but the sub/infertility distresses me greatly.

- Facebook ~~~~~~~~~~~~~~~~~~~~~~~~~~
My Dr is amazing.
She understands. She has it also. But she makes sure I'm comfortable always. I love her. Seriously wouldn't imagine the quality of my life without her.

Facebook
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It gets to me when teenage girls aren't taken seriously, being told "you're too young to have it". It's time to get real and include teenagers as being just as likely to have it too instead of passing them off with another prescription for 100 Panadol.

- Facebook
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To hear more stories, please join our
Facebook community to:

Learn ~ Share ~ Connect